This foundation was formed to promote awareness of children afflicted with Menkes disease. Menkes is a rare genetic disease that is commonly missed by the medical community because the signs and symptoms at birth and in early infancy are subtle and often confused with other diseases. Early treatment of symptoms is crucial for these children to maintain a sense of normalcy during their infancy and early childhood. Because of this we encourage prenatal genetic testing for neurological diseases.
Our goal is to achieve improvements in Menkes research, healthcare, education, and community involvement through medical conferences, advertising, fundraising events and other similar endeavors.
We would like to provide a living example of brotherhood between friends and families who have lost loved ones to this disease. This can be achieved through a commitment to common charitable activities in honor of their loved one. Our ultimate goal is to create a national charitable organization in honor of those who have suffered from Menkes disease. This organization was founded in the memory and spirit of our son, Wesley Quinn Eckman.
The Menkes Foundation is a 501(c)(3) non-profit organization.