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James was born on January 31, 2006.  He was 5 LB. 13 oz. and 20 in. long.  About a month early, but we were so excited.  James spent 13 days in the NICU before we were able to take him home.  We were so sad, but whatever was best for him was ok with us.  The first day we took him home we started doing all the new parent things that everyone does.  Feeding, tucking him in, changing multiple diapers and holding him all day long.  His ability to thrive was cut short at around 3 months of age, but we all just figured it was because he was premature. 

Around that same time, James had a seizure that lasted about 3 hrs. long.  They couldn't make it stop until we got to the E.R.  Two spinal taps later, and a ton of blood tests, they sent us home explaining it was just infantile seizures or something along that nature.  About a month after that, he had another one and we ended up in the hospital for a 3 week stay.  It was not infantile seizures, it was Menkes Syndrome.  Throughout the next 11 months, we had few trips to the hospital.  Luckily, we had a terrific hospice group, the WINGS program in St. Louis, MO, that took great care of James and made his life as comfortable as possible. 

On May 12, 2007, James William Bolen earned his angel wings.  James left us in the most peaceful manner possible.  He passed in our arms and in no pain what so ever.  James has forever changed who we are as individuals and as a couple.  We will never forget him, and we talk to him everyday, for he is still with us always.

Proud Parents,
Jackie and John


Posted: May, 2007

 
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